Quality of Life in Children with Ulcerative Colitis
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https://doi.org/10.61699/cjmps-v1-i1-p1-11关键词:
inflammatory bowel disease, ulcerative colitis, quality of life, disease activity, extraintestinal摘要
The aim of the research is to analyze the results of an evaluation of the quality of life of children with ulcerative colitis depending on disease clinical characteristics. 15 children with UC were examined (8 boys and 7 girls, average age - 14.3 ± 1.4 years) Severity of the disease was determined using the Pediatric Ulcerative Colitis Activity Index (PUCAI), estimates of the quality of life of the children and their parents using PedsQL 4.0 Generic Core Scales. Observation of patients included in the study was carried out for a year, the studied parameters were evaluated at the beginning of the observation at the first examination, after 6 and 12 months.The study of QOL level revealed a decrease in the performance of various scales of the PedsQL 4.0 questionnaire, both when assessing children with UC and their parents. The remitting nature of the disease and its frequent relapses in pediatric patients with UC have a significant impact on the quality of life of children, in particular, the effect of the disease on their physical activity and schooling is shown. The search for associations between clinical manifestations and indicators of the quality of life of UC in children also showed the presence of a number of statistically significant inverse correlations. Study showed that subjective assessments of the quality of life of children and their parents largely coincided. The data indicate that, during the examination of children with IBD, the pediatrician should assess the presence of socio-psychological stress factors in each child, interview parents about the performance and attendance of the children at school. A mandatory component of the examination and management of patients with IBD should be monitoring the level of quality of life of children associated with health, since this category of patients is characterized by its significant decrease relative to the corresponding indicators in healthy peers.
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